Thursday, May 15, 2014

Busy week and 1 year older!!!!

It has been such a busy week for Bella and it is only half over. On Monday Bella and I got to appear on ABC 27 Good Day PA to talk about the upcoming Walk to Cure Arthritis. Then on Tuesday it was Bella's 11th birthday! She also got to film a commercial with WGAL TV 8 for the upcoming Walk to Cure Arthritis. She brought a small group of friends to take part in the filming which was a ton of fun and an experience of a lifetime! Afterwards we went to lunch as a group before the kids all headed back to school for their Spring Chorus, Band, and Orchestra concert. Later that night they all performed for the public and it was a great show! As if the day wasn't busy enough, we had a Sweet Frog fundraiser to help raise money for Bella's team account. It was a huge success and more people came out than we expected, so thank you all for your generosity! Your support means the world to our entire family!!!! This has all been a great distraction for Bella. She still has her usual morning stiffness and knee pains but overall the new medication is making a difference. She is dealing with some pesky mouth sores and skin peeling from her medicine but the side effects are far less than the improvement the medicine is making. She had 3 pain free days last week but it followed with a couple of rough days. But we are still quite optimistic that we are moving in the right direction! We love her physical therapists so much....they got her a gift for her birthday too! So Sweet of them!!! Please if you haven't already, join Team Bella Mia for the Walk to Cure Arthritis in Carlisle, PA. If you can't come walk, consider a donation. All money goes towards research that will one day find a cure! We definitely would love to find a CURE!!!!!!!

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