Sunday, December 15, 2013

It's been a busy 2 weeks....

Over the past couple of weeks we have been busy starting Bella's 5th annual food drive, shopping for Christmas, and attending holiday events. Bella went to her first JA Holiday party and got to hang out with other kids with JA. We ate a yummy lunch, sang Christmas songs, learned about JA, and did crafts. Unfortunately we had to leave early because Bella was not feeling well from her last dose of MTX(chemo) and was fatigued. But we were glad to go and meet new JA families. The Arthritis Foundation is a wonderful organization and has been a great support system for our family.

I had the 504 disability hearing at Bella's school this past week. It was emotional but we got everything needed to help Bella be successful at school for many years to come. The ladies from the school district were so kind and helpful in their suggestions for additional accommodations.

Then this past Saturday we had the Jingle Bella Run that benefits the Arthritis Foundation. Dan formed a team and we called it Team Bella Mia. Val, her 2 friends, Mitch, Mike, Anthony, and Duane formed the team. Thank you to you all for supporting Bella....it means a lot. We also had a bunch of friends on the side lines with Bella, Chloe, and I. Thank you to everyone who came out to support Bella. I surprised Bella and all the team members with Team Bella Mia drawstring bags. What made them extra special was the design was a picture that her little sister drew in school. So Bella & Chloe were so excited! It was such a fun morning, snow and all! THANK YOU, THANK YOU, THANK YOU!!!!!!


Last night we began to prep Bella for her procedure on Monday. Poor kid is hating life right now because of the bowel prep. Anyone that has gone through this knows what I mean. Bella and the bathroom will become best friends later today....he he POOR KID!

I'm asking for lots of prayers and good vibes tomorrow as we venture off to Hershey Children's Hospital for Bella's procedure. They said she will be under for about an hour and will need to be monitored for 24 hours afterwards. Bella is quite nervous and actually asked me what happens if they can't wake her back up. I assured her that would not be a problem and she shouldn't worry. 
Hopefully we get the results quickly and we can move forward with the next round of treatments.......which we hope leads to a REMISSION.                

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